May I wish all of you who are mothers a happy day tomorrow with or without your families.
What the church has always called Mothering Sunday has been commercialized into Mothers Day.
Whatever we call it, we honour our mothers whether they are in this world or the next.
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Fibromyalgia Awareness Day Countdown
Eight weeks to go before Fibtomyalgia Awareness Day! Plans are being made worldwide. Ideas abound but decisions on what to actually do are not quite as definite.
The Horsham Fibromyalgia Support Group are holding a celebratory dinner, with everyone hopefully attired in purple and yellow, the international and national colours that represent fibro. I would like to hear what other groups are doing on May 12th. You can use the Comments facility at the end of this blog.
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212. I sometimes give myself admirable advice, but I seem to be incapable of taking it.
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Is talking on the phone harder than it used to be? See what gets in the way of this kind of communication for us and what can make it easier, below.Also this week, a note on terminology for chronic fatigue syndrome, including why I use the names I use; down under More from About.com, I've included information on some of our symptoms.
Take care of yourself!
Adrienne Dellwo
Fibromyalgia & Chronic Fatigue Syndrome Expert
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Do you have existing health problems that can’t seem to go away? Irregular sleep, poor immune system, hair loss, fatigue, or other serious chronic health problems?Even though there are plenty of foods today for Americans, the CDC’s Second Nutrition Report, an assessment of diet and nutrition in the U.S. population, concludes that there are a number of specific nutrients lacking in the American diet.
These nutrient deficiencies can cause many health problems in your body and wreck your overall well-being. Below are 7 of the common nutrients that most people lack:
Iodine
- Vitamin B12
- Vitamin C
- Magnesium
- Iron
- Zinc
- Vitamin E
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You’ve probably heard them all before – you may have even believed some of them. Whether you know someone with fibromyalgia or suffer from it yourself, you’ve probably been exposed to myths about the condition. Though awareness is spreading and the medical field is gaining new insights into fibromyalgia – many of these early myths or misconceptions are still being perpetuated.
While some misconceptions may always persist, it is important to separate fact from fiction. Knowing the facts about fibromyalgia can help the sufferer understand his/her condition better and help the outside observer to be more understanding towards friends or loved ones with fibromyalgia.
Lets take a look at five of the most common myths or misconceptions about fibromyalgia:
- It’s All In Your Head
- Pain is the only symptom
- Only middle-aged women get fibromyalgia
- Fibromyalgia isn’t treatable
- Fibromyalgia isn’t a real diagnosis
Knowing the truth about fibromyalgia is important for furthering awareness and giving both insiders and outsiders alike an accurate perception of this often-misunderstood condition. Dispelling the myths about fibromyalgia can help improve the lives of fibromyalgia patients by removing preconceived notions that may be holding them back from getting help. It can also increase the compassion and understanding of non-sufferers – resulting in better support from friends and loved ones.
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FMA UK & Fibro Action Merger
FibroAction and Fibromyalgia Association UK (FMA UK) will be working together more closely in the future. The trustees of each charity decided it would be in the best interests of both the charities and the people they serve to combine their expertise, experiences and resources. The trustees are now in talks regarding how to proceed with this process, which may take some time.
Ella Vine, Chief Executive of FibroAction said: ‘This is a very exciting time for the charities and for all of us in the wider fibromyalgia field. This is a very positive step in the right direction. We are all delighted about it. The charities have a national scope, undertake very similar work, serve the same population, have the same group of supporters and the same aims. It will therefore be good to combine our resources to ensure that people affected by fibromyalgia in the UK receive the best possible support and that our voice is stronger and heard by policy makers. We are thrilled about it.”
Pam Stewart, Chair of FMA UK said: “The trustees of FMA UK are delighted for FibroAction to be joining with the trustees of FMA UK to be able to move forward together with their support for people with fibromyalgia. This should allow for an even more proactive role in ensuring the best treatment options for fibromyalgia.”
Thank you for reading this. If anyone has any questions then please email the office on head.office@fmauk.org
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Citadel Stamps is helping FMA UK by organising a stamp appeal.
It’s easy to get involved, just save your used stamps and ask your family, friends, work colleagues, employer and local schools to help by saving their stamps too.
Stamps should be clipped leaving a 5-10mm border around the stamp - this increases the value.
You can help increase the value of the stamps you send by using current high value commemoratives to post them to:
FMA UK Stamp Appeal
PO BOX 6107
Stromness
KW16 9AB
Thank you for reading this. If anyone has any questions then please email the office on head.office@fmauk.org
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Resignation of Teresa White as RC for SE4
Please note that Teresa White has resigned as the Regional Coordinator for the SE(4) area with immediate effect. Telephone calls and emails are being directed to the office in the meantime.
Groups in the SE4 region should contact the office in the first instance with any queries or issues.
Our thanks and appreciation goes to Teresa for all the hard work she has done in the post.
Thank you for reading this. If anyone has any questions then please email the office on head.office@fmauk.org
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Weighing in on ‘Malaise’
So The Institute of Medicine has complicated and expanded the terminology wars with its recent report suggesting Systemic Exertion Intolerance Disease as a more accurate name. I don’t like it much more than I don’t like Chronic Fatigue Syndrome, but I recognize the value of the report’s major findings and dare to believe that the publicity will have positive effects. What really gets me, though, is the Institute’s acceptance of the phrase “Post Exertional Malaise” as the distinguishing symptom of whatever this disease will ultimately be called.
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Being Patient… and Excited: The Institute for Neuro Immune Medicine’s Patient Day
The mitochondria and energy were highlighted in two talks at the conference.Speaking from off-site at a surprise birthday party, Dr. Klimas noted that the Institute For Neuro Immune Medicine at Nova Southeastern has grown enormously in the three years it’s been in existence. Employing no less than 34 people, my guess is that it may be the largest single treatment-research effort focused on these types of diseases anywhere.
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Eyes on the Prize: NIH Spending On ME/CFS in 2014
There is no denying or avoiding the importance of the IOM report and its associated controversies, but ME/CFS advocates must keep eyes on the prize: NIH funding for ME/CFS research. The 2014 spending numbers are out and NIH did not make headway on ME/CFS.
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Fibromyalgia: Understand the diagnosis process
[Fibromyalgia symptoms often mimic those of other conditions. Determining the true cause of your symptoms is key to receiving proper treatment.
Fibromyalgia symptoms include widespread body pain, fatigue, poor sleep and mood problems. But all of these symptoms are common to many other conditions. And because fibromyalgia symptoms can occur alone or along with other conditions, it can take time to tease out which symptom is caused by what problem. To make things even more confusing, fibromyalgia symptoms can come and go over time.
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Newsletter: March 6th 2015
It has been a very exciting week for The Optimum Health Clinic, with a major article in The Times on Tuesday from former Royal Harpist Claire Jones talking about her recovery. Claire was interviewed by Alex on Secrets to Recovery LIVE last Monday, and the interview is now available to view at: https://www.youtube.com/watch?v=kPPSkvoTMyc
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The other day I was eating lunch with a friend and colleague and he mentioned that copper can increase the risk of cancer. This was not the first time I had heard something scary about copper. Last year, another friend (a medical doctor) also entioned copper’s association with cancer, especially hormonal types. How could something so integral to our body be so bad I wondered?I researched it. Just like I suspected, copper is essential to good health. We don’t need a lot of copper, but certain healthy amounts are vital and essential to our health and well-being. It’s all about balance! ??Copper is required for the formation of about 50 enzymes and it’s needed for our transporters, which shuttle hormones and neurotransmitters all over your body. Copper protects the lining of blood vessels and myelin. It supports energy production. Did you hear me? Energy! I think one of the most important facts about copper is how it supports the healthy functioning of two major enzymes in your body, one is SOD and the other is DAO.
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With so many lovely days I was unlucky to have chosen a day of rain and drizzle to meet with friends for a walk along the Seven Sisters near Eastbourne. Yes we got a bit wet but the National Trust do very good cake and I’m glad I went. There are times when one just needs cake! I enjoy walking and cycling both great forms of low impact exercise. As many of you know I am off later this month to cycle in Vietnam.Also:
Education: Why should I exercise?
Video of the week: Exercise to release the SI joint
Success Story: Philip Smith
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Does this ring true for you?
Stella
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Contact: fmsstella@gmail.com
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N.B. The links on this my FMS eNews blog are in the BROWN text, usually in the title of each article but occasionally elsewhere too. Some titles have no links in which case the title is in PURPLE like the dividers. This blog gives just a taster of each article which can be viewed in full through its link. If you have any navigation problems, let me know.
I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources. Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.
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